nerve graft

Cancer Update July 2019 (actual cancer, not the Zodiac sign)

July 10, 2019
Posted in

I had a PET scan at Mayo Clinic on July 8th and the results came back clean – there is no evidence of cancer at this time. My surgeon is pleased with where I am in regards to tissue fibrosis and the nerve graft. He is also hopeful that I might be having early signs of improvement with facial tone and nerve function.

I will return to Mayo this autumn for another scan and a second eye surgery (lateral tarsorrhaphy in tarsal strip).

While I am ecstatic that there is no sign of cancer on the scan, the trip and tests have left me completely drained.

The healing process is frustrating, and many days it feels like I am not healing at all, but it is encouraging that the doctors say I am doing really well at this stage post-surgery and treatment.

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I’m not dead, but I do have cancer, again

March 11, 2019
Posted in

I disappeared in October, 2018. Here’s why:

In August, 2017 I was diagnosed with eosinophilia (too many of a certain type of white blood cell). My doctors were at a loss for what was causing it, so after almost a year of tests I was referred to Mayo Clinic in Rochester, MN. Long story short, we made 6 trips in 11 weeks and they still don’t know the cause. All we know is that the eosinophilia is getting worse and it is attacking my nervous system. This non-stop eosinophilic attack has left me with progressing, wide-spread neuropathy.

Towards the end of the whirlwind diagnostic process, the doctors at Mayo found cancer in the deep lobe of my left parotid salivary gland, not related to my eosinophilia. During surgery on December 13th, 2018, it was discovered that the cancer was completely wrapped around my facial nerve and the nerve tested positive for cancer. My surgeons had no choice but to remove the cancerous nerve section and perform a nerve graft that has resulted in the left side of my face being paralyzed. I also had a total left parotidectomy and modified neck dissection. We received the official diagnosis shortly after surgery – high-grade mucoepidermoid carcinoma, a highly aggressive salivary gland cancer that likes to grow along nerves.

While I am lucky I avoided chemotherapy, I had no choice but to start 6 weeks of radiation therapy in January because the cancer is very aggressive, plus I had an additional cranial nerve that looked suspicious on one of my MRIs. After researching my options, I made the choice to do proton beam therapy at Mayo, which is 10 hours from where I live. It has been an extremely brutal winter, but I finished treatment on March 1st and I’m now back home and recovering.

I’ve missed blogging and I have a lot to catch up on. Needless to say, I am happy to be finished with radiation therapy and I hope this is the last time I have to deal with cancer (my fist cancer was metastatic papillary thyroid carcinoma in 2005).

Spread the love:

© 2021 Blodeuyn. All Rights Reserved.

nerve graft

Cancer Update July 2019 (actual cancer, not the Zodiac sign)

July 10, 2019
Posted in

I had a PET scan at Mayo Clinic on July 8th and the results came back clean – there is no evidence of cancer at this time. My surgeon is pleased with where I am in regards to tissue fibrosis and the nerve graft. He is also hopeful that I might be having early signs of improvement with facial tone and nerve function.

I will return to Mayo this autumn for another scan and a second eye surgery (lateral tarsorrhaphy in tarsal strip).

While I am ecstatic that there is no sign of cancer on the scan, the trip and tests have left me completely drained.

The healing process is frustrating, and many days it feels like I am not healing at all, but it is encouraging that the doctors say I am doing really well at this stage post-surgery and treatment.

Spread the love:

I’m not dead, but I do have cancer, again

March 11, 2019
Posted in

I disappeared in October, 2018. Here’s why:

In August, 2017 I was diagnosed with eosinophilia (too many of a certain type of white blood cell). My doctors were at a loss for what was causing it, so after almost a year of tests I was referred to Mayo Clinic in Rochester, MN. Long story short, we made 6 trips in 11 weeks and they still don’t know the cause. All we know is that the eosinophilia is getting worse and it is attacking my nervous system. This non-stop eosinophilic attack has left me with progressing, wide-spread neuropathy.

Towards the end of the whirlwind diagnostic process, the doctors at Mayo found cancer in the deep lobe of my left parotid salivary gland, not related to my eosinophilia. During surgery on December 13th, 2018, it was discovered that the cancer was completely wrapped around my facial nerve and the nerve tested positive for cancer. My surgeons had no choice but to remove the cancerous nerve section and perform a nerve graft that has resulted in the left side of my face being paralyzed. I also had a total left parotidectomy and modified neck dissection. We received the official diagnosis shortly after surgery – high-grade mucoepidermoid carcinoma, a highly aggressive salivary gland cancer that likes to grow along nerves.

While I am lucky I avoided chemotherapy, I had no choice but to start 6 weeks of radiation therapy in January because the cancer is very aggressive, plus I had an additional cranial nerve that looked suspicious on one of my MRIs. After researching my options, I made the choice to do proton beam therapy at Mayo, which is 10 hours from where I live. It has been an extremely brutal winter, but I finished treatment on March 1st and I’m now back home and recovering.

I’ve missed blogging and I have a lot to catch up on. Needless to say, I am happy to be finished with radiation therapy and I hope this is the last time I have to deal with cancer (my fist cancer was metastatic papillary thyroid carcinoma in 2005).

Spread the love:

© 2021 Blodeuyn. All Rights Reserved.

Blodeuyn

Art, Tea, and Druidry

nerve graft

Cancer Update July 2019 (actual cancer, not the Zodiac sign)

July 10, 2019
Posted in

I had a PET scan at Mayo Clinic on July 8th and the results came back clean – there is no evidence of cancer at this time. My surgeon is pleased with where I am in regards to tissue fibrosis and the nerve graft. He is also hopeful that I might be having early signs of improvement with facial tone and nerve function.

I will return to Mayo this autumn for another scan and a second eye surgery (lateral tarsorrhaphy in tarsal strip).

While I am ecstatic that there is no sign of cancer on the scan, the trip and tests have left me completely drained.

The healing process is frustrating, and many days it feels like I am not healing at all, but it is encouraging that the doctors say I am doing really well at this stage post-surgery and treatment.

Spread the love:

I’m not dead, but I do have cancer, again

March 11, 2019
Posted in

I disappeared in October, 2018. Here’s why:

In August, 2017 I was diagnosed with eosinophilia (too many of a certain type of white blood cell). My doctors were at a loss for what was causing it, so after almost a year of tests I was referred to Mayo Clinic in Rochester, MN. Long story short, we made 6 trips in 11 weeks and they still don’t know the cause. All we know is that the eosinophilia is getting worse and it is attacking my nervous system. This non-stop eosinophilic attack has left me with progressing, wide-spread neuropathy.

Towards the end of the whirlwind diagnostic process, the doctors at Mayo found cancer in the deep lobe of my left parotid salivary gland, not related to my eosinophilia. During surgery on December 13th, 2018, it was discovered that the cancer was completely wrapped around my facial nerve and the nerve tested positive for cancer. My surgeons had no choice but to remove the cancerous nerve section and perform a nerve graft that has resulted in the left side of my face being paralyzed. I also had a total left parotidectomy and modified neck dissection. We received the official diagnosis shortly after surgery – high-grade mucoepidermoid carcinoma, a highly aggressive salivary gland cancer that likes to grow along nerves.

While I am lucky I avoided chemotherapy, I had no choice but to start 6 weeks of radiation therapy in January because the cancer is very aggressive, plus I had an additional cranial nerve that looked suspicious on one of my MRIs. After researching my options, I made the choice to do proton beam therapy at Mayo, which is 10 hours from where I live. It has been an extremely brutal winter, but I finished treatment on March 1st and I’m now back home and recovering.

I’ve missed blogging and I have a lot to catch up on. Needless to say, I am happy to be finished with radiation therapy and I hope this is the last time I have to deal with cancer (my fist cancer was metastatic papillary thyroid carcinoma in 2005).

Spread the love:

© 2021 Blodeuyn. All Rights Reserved.